FightingFA

Hi there!

My name is Frankie, I am 27 years old and have a rare progressive neuromuscular genetic disease called Friedreichs ataxia or FA. It affects around 15-20,000 worldwide and currently there is no cure. I was a late onset and was diagnosed at the age of 22. It affects everything in my body and it is progressive so I will get worse over time.

Since I have to continually adapt to getting around and living life,  thought it would be a good idea to create a channel dedicated to my life with FA. I focus on fitness and apply what I have learned over the years in physical therapy and information from my previous personal trainers. 

There is not a lot of fitness channels dedicated to the FA or disabled communities so I want to change that!

If you have FA like me, please remember all of us are at different stages of progression. I may be able to do something that you may not be able to do and vice versa. Consult your doctors for specific health questions.

Stay safe and be well!